A little bit of crazy amongst all the chaos to help keep me sane . . .
. . . in all seriousness, thanks for stopping by! This blog will no doubt evolve over time, and will include all sorts of content. My aim is to let you know what we're doing as a family, how I'm coping as the mum of a child with Cerebral Palsy, and a variety of other things too.
If you are the parent of a special needs child, I pray that you will find encouragement, hope and support within these posts. I'd like to get to know your story too, so be sure to leave a comment.
I hope you'll come back soon.
Sunday, 13 May 2012
I love that my boys still enjoy giving me kisses and cuddles, and even more-so when it's Mother's Day. We stopped at the supermarket to get fresh bread for lunch on the way home from church. Reuben had given Phil strict instructions to also get flowers and chocolate. The instructions even included a reminder that the chocolate couldn't contain nuts (I found out at the end of last year I'm allergic to a variety of nuts).
This afternoon, I even got to have a wee snooze on the sofa, the sun streaming in the window, and after I woke up Reuben and I had more cuddles. Isaac must have picked up on this when he awoke from his nap, because he kept on insisting on pickup cuddles, too. We don't do those for Reuben much anymore, 'cos he's getting to be such a big boy and too heavy to lift for any length of time, and once you start, he won't let you finish. But because Reuben asks for something, Isaac will too. So today I enjoyed getting lots and lots of cuddles.
Five months old
Tomorrow is Isaac's first day at Champion Centre. I'm looking forward to seeing what happens there, and the different kinds of therapy. But at the same time, I'm a little apprehensive. What if Isaac's disabilities are worse than we thought? I'm noticing more and more things with his movements that could be Cerebral Palsy related.
I'm keeping a couple of scriptures in the forefront of my mind.
Matthew 6:34 "Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own."
Philippians 4:6 "Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God."
Isaac was a very sick little boy - but God is a God of miracles
I kind of got side tracked the other day when I was talking about technology (the clothes peg thing). . . .so I'm going to finish that now.
With all the options for communicating with people, social media, etc it can get a little overwhelming, but at the same time it can be a lifeline. Blogs, facebook, twitter, various email addresses (home, work, plus others - I keep a seperate one for my blogging), add to that cell phones (text, pxt, call) and regular phone lines.
A good friend of mine also has a special needs little boy. He's been fighting for survival since their 20 week scan, and is now 2 years 7 months. We worked together for a while, but remained friends after we both changed jobs. We had really been looking forward to our babies being able to hang out and run around together. Now that Isaac has been accepted into Champion Centre, we might have a better chance of catching up with each other - even if it is at therapy. Last time we saw each other, it took months for our calendars to sync to enable us to do this, even though we only live five minutes around the road. So we really rely on technology to keep in touch.
Isaac being transported for his MRI at 48 hours old